(c) Melinda Smith 2011

Archive for December, 2011|Monthly archive page

I am autistic

In Autism Poem on December 23, 2011 at 5:19 pm

A while ago I posted a poem called I have autism that was a ‘google-sculpture’. I said it was half of a pair. Here is the second half, also a google-sculpture – that is, the words in the poem are edited and rearranged results from a Google search on the phrase ‘I am autistic’.  Reading the two poems together I hope gives a window into the online autism community, as well as illuminating some of the debate about ‘person-first’ language in an autism context (does one say ‘autistic person’ or ‘person with autism’ ? Depends on who you ask…)

I am autistic…
 
because I cannot be separated from how my brain works
 
, I’m not a brat
 
: ask me about my needs
 
, not just an adult with autism. It is a part of who I am. I was born this way. I would not choose to change that.
 
, I’m not crazy.
 
. I can speak. My voice is different, not weak, and if you listened…
 
. I’m an adult, with a career, a mortgage, and my first grey hairs. I’m female
 
. I don’t have autism.  That’s a thing I’ve been saying forfuckingever. And yet people keep insisting on pointedly saying that…
 
. I’m apparently what they call “high-functioning”, but I don’t like the term very much; the division feels artificial
 
, and I think in pictures. If the philosophers are correct, I…
 
, and that’s even better !
 
and proud of it, says Indonesian Oscar Yura Dompas, at the launch of his autobiography, Autistic Journey, at QB world Book Plaza
 
: what’s your excuse ?

Social Stories for Neurotypical Adults #27 : No dogs allowed

In Autism Poem on December 16, 2011 at 4:55 pm

The poem below is in the form of a social story.  Most of those living with autism will be familiar with this behaviour modification tool, first developed by Dr Carol Gray.  Social stories are used with autistic (and other developmentally delayed) people to help them understand social situations and to illustrate appropriate and inappropriate behaviour.  They are written in a very particular (and proscribed) kind of idiom, with the sentence structure kept as simple as possible to minimise potential for confusion.  Reading a whole book of sample social stories can be hilarious: ‘When is the right time to talk about Thomas the Tank Engine’, anyone ?

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Poetry appearing on this page was produced with the generous support of artsACT

However I often find myself wishing that instead of ‘using’ social stories on my child, I could ‘modify’ the ‘behaviour’ of certain other members of the public so my child could have the right to a happy and safe experience of public space. The following poem comes out of that place…

 

 

 

 

 

Social Stories for Neurotypical Adults #27 :  No dogs allowed

I love my dog.
My dog’s name is Hackles.
I love to go walking with Hackles. It makes both of us very happy.
Hackles’ favourite thing is to run around without her leash on.
I love to see how happy she is when she does this.

There are some places where dogs are not allowed to go.
There are some other places where dogs are allowed, but only on a leash.
You can tell if you are in one of those places because there are big signs,
sometimes even with a picture of a dog with a red line through it !
I hate those signs. They make me mad !
I think it is unfair that Hackles can’t just go wherever she wants.
Sometimes I just ignore those nasty old signs.

Not everyone loves dogs.
Some people are scared of dogs.
Some children are so scared of dogs they have to scream and run away whenever they see a dog.

When someone acts afraid of Hackles, I get really upset.
Hackles is really sweet and wouldn’t hurt anyone.
Sometimes I want to take Hackles right up to the scared child and make them pat her,
just so they can see there is no reason to be afraid. 

If I take Hackles too close to a scared child it could be really dangerous.
The child might run away onto a busy road or into deep water.
Or they might scream so much that Hackles gets scared and angry and bites them.
Or they might get so upset they hurt themselves or other people, or me or Hackles.
I do not want this to happen.

I will try to remember that not everyone loves dogs as much as I do.
I will try to remember that the ‘no dogs allowed’ and ‘no dogs off leash’ areas are there for a reason.
The people and children who are scared of dogs need to have somewhere they can feel safe.

I will try to remember to do what the signs say.
Smart grown-ups obey signs.

I have autism

In Autism Poem on December 6, 2011 at 9:38 pm

The poem below was written using a new(ish) poetic technique (10 years is a short time in poetry) called google-sculpting.  I have been experimenting with this technique for a while now and I find it is a good way of capturing a diversity of voices and opinions about something.  It is particularly useful when writing about people living with autism because so many members of that community spend so much time connecting with each other online.

artsACT Logo

Poetry appearing on this page was produced with the generous support of artsACT

I have decided to do a pair of google-sculpts, one based on the search phrase ‘I have autism’ and the other based on ‘I am autistic’ – highlighting a hotly debated issue about ‘person-first’ language but also hopefully capturing some other interesting ‘noise’ along the way.  This is the first of those.

I have autism

Do i have autism? high functioning autism, long periods of time, someones eyes
I Have Autism – Chapter 1 – YouTube
I have autism and I want you to know
True Life (TV series documentary 1998– ). I Have Autism. Documentary. Your rating: 1 2 3 4 5 6 7 8 9 10 -/10 X.
What are signs of Autism?,i have 2 month old twins and still in the …Your children are too young to worry about autism. It isn’t usually picked up until after age 2 (and 2 is early, usually more like around age 3). At this young of an age …
Autism: I have waited four years to get a kiss from my son. Now he’s kissing everybody
I’m not misbehaving, I have autism. Please be understanding
I don’t have autism. I am autistic.

How do I know if I have autism? What is autism? Autism is a lifelong developmental disability and is part of the autism spectrum. People with …
I Have Autism, my favourite book
I have Autism – Christian Forums Hey. My name is Lauren, I was diagnosed with autism in my toddler years. It’s actually very mild, a lot of people don’t even know I have it, but.
MTV’s I have Autism | try-therapy.com … MTV dares to impress with “I Have Autism.” The presentation details the lives of three very inspiring young men who all have differing …
Young I’m Not Misbehaving, I have Autism Nicholas Lombardi developed this pin, “I’m not misbehaving, I have Austism,” in a beautiful effort to …
Autism Speaks can go away. I have autism. I can speak for myself

Do you think I have autism ?
Autism Resources Miramichi Inc. – Lending LibraryBOOKS” I have Autism” – A Child’s First Look at Autism by Pat Crissey1001 Great Ideas for Teaching and …
My baby brother and I have autism
I have autism. What’s your excuse?’ T-shirts poke fun at disability, help educate others, mother says. My son Brandon looks like a typical teenager – until he …
I Have Autism” Child Size awareness bracelet is great for non verbal kids in case they get separated from you. On sale now at FlagsOnCars.com, you patriotic …
Yes, I have autism. Stare if you must. I’m not paying attention to you anyway

Could i have autism ?
Fishpond Australia, I Have Autism… What’s That? by Paddy McNally Kate Doherty. Buy Books online:
I have autism. Hear me out.
Special Needs 4 Special Needs I have Autism – temporary tattoo – I have Autism temporary tattoo. Featuring hot pink text on a bright green …
I’m not rude, I have autism

Do I have Autism? – NeuroTalk Support Groups no online test is going to give you even a clue if you have autism of not. The ONLY way you will know is if you talk to a doctor, and go to …
New to group and I have autism
Syndrom Puzzle Piece by MedicalAlert I Have Autism AspergersSyndrom Puzzle Piece Ribbon 2.25 pin back button badge. Asthma, peanut allergy, severe food allergies, diabetes, tree nut.
Shop I Have Autism Framed Prints. Large selection of unique and funny I Have Autism designs. 100% satisfaction guarantee. Fast shipping

Did I have autism? [Archive] – Physics Forums
I was too “weird” for them, due to the fact that I have autism. I just did not know the rules of what you were or were not supposed to do. I would come to a party too …

I have autism spectrum disorder ? what does this mean? does it mean ….I cant make friends?….. Share and Enjoy: …
I have autism and I want to work with people who have autism, any …

I have autism and I’m not afraid to use it

What I learned at school

In Autism Poem on December 1, 2011 at 8:25 pm

This poem is in the voice of an elementary school / primary school child with Autism Spectrum Disorder. The child is ‘high functioning’ enough to attend a mainstream school. Whether that means he or she can survive unprotected in the playground may be another matter…

Comments welcome as always.

artsACT Logo

Poetry appearing on this page was produced with the generous support of artsACT

PS  It is also in the form of a villanelle, which has a refrain that repeats according to a particular pattern. I nearly called it ‘bullynelle’. I think the present title is better though. 

What I learned at school

Again today he said he was my friend.
He made me spin around ’till I was sick.
So is that bullying, or just pretend ?

I said my money was for me to spend.
He told Miss Green I hit him with a brick.
Again today he says he is my friend.

The others, when they see him coming, send
him straight to where I am. He’s pretty quick.
So is that bullying, or just pretend ?

He took me to the toilet down the end
and wet the urinal and made me lick.
Again today he said he was my friend,

but after that he made me stand, and bend,
then poked me in the bottom with a stick.
So is that bullying, or just pretend ?

My teacher told me off: ‘This has to end.
‘By now you should have wised up to this trick.’
Again today he says he is my friend.
So is that bullying, or just pretend ?